Dear future mama
A raw, funny and fiercely uplifting letter to a new mum coming to terms with a Down syndrome diagnosis. A powerful reminder that love, laughter and fierce pride are just around the corner.
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Down Syndrome UK
With you for the journey
Down Syndrome UK is a parent-led organisation providing honest support and expert resources to families and professionals, empowering every child with Down syndrome to thrive.
Freya's story
Getting a diagnosis of Down syndrome for our baby whilst pregnant was a shock and we were really unsure of what this meant for our family
Having DSUK put us in touch with parents of older children with Down syndrome really helped us come to terms with our baby’s diagnosis.
Since birth we have been supported by DSUK with online physiotherapy, feeding, early development courses, Makaton, information for nursery and now currently toilet training and preparing for school.
Our confidence in advocating for our daughter has come from the excellent information and support we continue to receive from DSUK.
Starting Primary School
As our children start primary school years, we provide support, training and resources to both parents and professionals.
Through collaboration, advocacy, and sharing best practices, we strive to build a world where diversity is celebrated, barriers are dismantled, and every child’s potential is realised.
Join us for one of our upcoming events
Read our blog
Sharing the News: Real-parent tips
Sharing the news that your baby has Down syndrome can feel overwhelming. Discover real parents’ experiences, gentle advice, and reassurance that you’re not alone.
Toothbrushing tips for children with Down syndrome: real-parent tips
Discover practical toothbrushing tips for children with Down syndrome. Parents share creative strategies – from songs and games to tools and routines – to make brushing easier and more fun.
Raise awareness wherever you go!
Pop onto our shop and browse our Down Syndrome UK merch! We now have various t-shirts, bags, window stickers, bags and more.
We’ve also put together Nursery and Primary School Information Packs to empower parents and the professionals working with our children.
Maternity Resources
It is important when discussing antenatal screening tests and results, that language used is respectful and accurate. Language is powerful and the first time parents hear the news of a diagnosis will stay with them forever.
We are delighted to provide resources and training to maternity units to ensure expectant and new parents have access to contemporary information about the reality of having a child with Down syndrome.
If you are a health care professional and would like to display/offer our resources, please get in touch.
